Patient involvement in clinical research: a qualitative evaluation of impact

نویسندگان

  • Rachael Gooberman-Hill
  • Amanda Burston
  • Erik Lenguerrand
  • Emma Clark
  • Emma Johnson
چکیده

Context The RESTORE programme comprises a randomised controlled trial, three pilot trials, a cohort study, qualitative studies and systematic reviews. Since 2010, the patient panel (PEP-R), has inputted into RESTORE. Seventeen patients have been involved in total, 8 were recruited at the time of the evaluation. Through facilitated group sessions, PEP-R provides input into refinement of patient recruitment materials, intervention development, readability of outcome assessment tools, and dissemination of findings. Patients also sit on steering groups and receive training.

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

منابع مشابه

Qualitative versus Quantitative Evaluation of Scientists' Impact: A Medical Toxicology Tale

Evaluation of scientists working in a specific area of science is necessary, as they may strive for same limited resources, grants and academic promotions. One of the most common and accepted methods of assessing the performance and impact of a scientist is calculating the number of citations for their publications. However, such method suffer from certain shortcomings. It has become more and m...

متن کامل

Designing and Developing a Proposed Parent Involvement Model and Investigating its Impact on Early Grade Students' Learning

Introduction: Family performance is one of the factors that can affect students and their learning quality. The purpose of the present study was to design and develop a proposed model of parental involvement and its impact on the learning of first grade students. Methods: In this study, mixed method was used. In the qualitative part of the research, inductive content analysis was used and in th...

متن کامل

Metrics and Evaluation Tools for Patient Engagement in Healthcare Organization- and System-Level Decision-Making: A Systematic Review

Background Patient, public, consumer, and community (P2C2) engagement in organization-, community-, and systemlevel healthcare decision-making is increasing globally, but its formal evaluation remains challenging. To define a taxonomy of possible P2C2 engagement metrics and compare existing evaluation tools against this taxonomy, we conducted a systematic review.   Methods A broad search strate...

متن کامل

Impact of Group Clinical Supervision on Patient Education Process: A Comprehensive Assessment of Patients, Staff, and Organization Dimensions

Background: The most important barriers to patient education are nurses’ poor motivation and training, and poor quality of managerial supervision. Clinical supervision could be a powerful tool for overcoming these barriers. However, the associated patient, staff, and organization-related outcomes still require further research. Aim: The present study aimed to evaluate the patient-, staff-, and ...

متن کامل

Assessing Patient Participation in Health Policy Decision-Making in Cyprus

Although the importance of patient participation in the design and evaluation of health programs and services is well-documented, there is scarcity of research with regard to patient association (PA) participation in health policy decision-making processes. To this end, the present study aimed to validate further a previously developed instrument as well as to investigate the degree of PA parti...

متن کامل

ذخیره در منابع من


  با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

عنوان ژورنال:

دوره 14  شماره 

صفحات  -

تاریخ انتشار 2013